Ja, jag tycker ni ska läsa det här också

Maj är EDS Awareness Month, så det blir extra mycket om EDS och att leva med kronisk smärta osv. Medvetenheten, kunskapen om det är så ermbarmligt låg och fördomarna så många; det behöver informeras. Jag vågar påstå att alla har någon i sin närhet som är drabbad på ett eller annat sätt, av kronisk sjukdom, man vet bara inte om det.

27 Things Chronic Pain Is Not

“Chronic pain is not a decision. It’s not a choice I make to ‘get out of things.’ I can’t just turn it off.” – Liv S.

“It is not going to be magically cured by the things that worked for your friend/aunt/grandmother/coworker/obscure guru who had the same symptoms acutely. Chronic is completely different from acute, and cannot be cured. We are lucky if it can be managed.” – CeCe JM H

“Chronic pain isn’t always visible. Please don’t tell me I’m a liar or a faker or it’s not real because you can’t see it. My pain and constant exhaustion’s very real and it hurts. Every day.” – Abi S.

“Chronic pain is not weakness! It takes unbelievable strength to deal with this pain day in and day out.” – Stormy S.
“Chronic pain is not my fault. You don’t get to decide that I’m not trying hard enough or doing enough for my health. And you don’t get to invalidate my pain because you ‘don’t think there’s any reason for me to be in pain.’” – Danielle L.T.

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